Rare Disease Day at NIH event features advances in rare diseases research
Rare diseases affect an estimated 25 million Americans. On Feb. 27, 2017, the National Institutes of Health will host Rare Disease Day at NIH to raise awareness about rare diseases, the people they affect, and research collaborations that are making a difference. The event will feature presentations, posters, exhibits, an art show and tours of the NIH Clinical Center — a hospital at which researchers are studying more than 500 rare diseases in partnership with nearly 2,250 unique patients.
Agenda: http://bit.ly/2kp65c9(link is external)
Registration: http://bit.ly/2ioutp1(link is external)
Watch the event live: https://videocast.nih.gov/summary.asp?live=21488&bhcp=1
Learn more: https://ncats.nih.gov/rdd
Feb. 27, 2017
8:30 a.m. – 4 p.m. EST
NIH Clinical Center (Building 10), Masur Auditorium, 10 Center Dr., Bethesda, Maryland
The event is sponsored by the National Center for Advancing Translational Sciences (NCATS) and the NIH Clinical Center. Other participating organizations include other NIH Institutes and Centers, the U.S. Food and Drug Administration(link is external), the National Organization for Rare Disorders(link is external), FasterCures(link is external), Genetic Alliance(link is external), Global Genes®(link is external), the EveryLife Foundation for Rare Diseases(link is external), and Uplifting Athletes(link is external).
Rep. Leonard Lance, (R-NJ), co-chair of the Congressional Rare Disease Caucus
Christopher P. Austin, M.D., director, NCATS, NIH
Anthony S. Fauci, M.D., director, National Institute of Allergy and Infectious Diseases, NIH
James K. Gilman, M.D., chief executive officer, NIH Clinical Center
John I. Gallin, M.D., associate director for clinical research and chief scientific officer, NIH Clinical Center